The book was easy to read, I finished it in one sitting. It was uncomfortable reading though, as it took a long time for Nia to accept her son for who he was.
There’s a lot of writing about the use of alternative, untested medicines and therapies, and I feel they have been romanised in a way which could encourage other families to follow a similar path; their child may not be so lucky if they stop epilepsy meds against medical advice.
However, Nia’s love for Joe shines through every page. He is her silver, she is his light. I’m glad I read it as most of the books relating to SEN and disabilities I read relate to autism. It gave a fresh perspective of how lucky my family are that our neurodiversities (and physical needs) are not used to dismiss abilities in the way Joe’s needs were. People need to get a new perspective when it comes to disabilities, and whilst there are elements of this book which make me uncomfortable, it will definitely give all who read it a new view of disability and coexisting ability.