Publications

Journal Articles

Ellis, R., Williams, G., Caemawr, S., Craine, M., Holloway, W., Williams, K., Shaw, S., Grant, A.  2025. Menstruation and Autism: A Qualitative Systematic Review. Autism in Adulthood, p. aut.2024.0307. doi: 10.1089/aut.2024.0307.

Grant, A., Griffiths, C., Williams, K. and Brown, A. 2025. “I Just Gritted My Teeth to Get Through It All”: An Online Survey of Autistic People’s Experiences of Maternity Care in the United Kingdom. Autism in Adulthood, p. aut.2024.0275. doi: 10.1089/aut.2024.0275.

Grant, A., Griffiths, C., Williams, K. and Brown, A.E. 2025. “I felt belittled and ridiculed for being in pain”: An online survey of Autistic people’s experience of care for pregnancy loss (perinatal loss) in the United Kingdom✰. Midwifery 141, p. 104266. doi: 10.1016/j.midw.2024.104266.

Grant, A., Turner, S., Shaw, S.C.K., Williams, K., Morgan, H., Ellis, R. and Brown, A. 2024. “I am afraid of being treated badly if I show it”: A cross-sectional study of healthcare accessibility and Autism Health Passports among UK Autistic adults. PLOS ONE 19(5), p. e0303873. doi: 10.1371/journal.pone.0303873.

Williams, G.L., Ellis, R., Holloway, W., Caemawr, S., Craine, M., Williams, K. and Grant, A. 2024. ‘Building our own house’ as an insider-only Community-Partnered Participatory Research Council: Co-creating a safe space for Autistic knowledge production. Autism, p. 13623613241253014. doi: 10.1177/13623613241253014.

Grant, A., Griffiths, C., Williams, K. and Brown, A. 2023. “It felt like I had an old fashioned telephone ringing in my breasts”: An online survey of UK Autistic birthing parents’ experiences of infant feeding. Maternal & Child Nutrition doi: 10.1111/mcn.13581.

Ellis, R., Williams, K., Brown, A., Healer, E. and Grant, A. 2023. A realist review of health passports for Autistic adults. Mahmoud, A. B. ed. PLOS ONE 18(9), p. e0279214. doi: 10.1371/journal.pone.0279214.

Woods, R., Williams, K. and Watts, C. 2023. “Profound autism”: The dire consequences of diagnostic overshadowing. Autism Research, pp. 1–2. doi: 10.1002/aur.2985.

Grant, A., Jones, S., Williams, K., Leigh, J. and Brown, A. 2022. Autistic women’s views and experiences of infant feeding: A systematic review of qualitative evidence. Autism, pp. 1–12. doi: 10.1177/13623613221089374

Book chapters

Williams, K. 2025. ‘I couldn’t describe to you this pain that I’ve lived with for so long’: How the Double Empathy Problem and Hermeneutical Injustices Contribute to Autistic Adults’ Disparate Health Care Access. In: The Double Empathy Reader. Readers in Neurodiversity. 1st ed. West Sussex: Pavilion Publishing and Media Ltd, pp. 239–258.

Grant, A., Williams, K., Henry, K., Holloway, W., Nicolaidis, C., Kara, H. and Brown, A. 2024. Co-developing an Autism Research Funding Application to Facilitate Ethical and Participatory Research: The Autism from Menstruation to Menopause Project. In: Bertilsdotter Rosqvist, H. and Jackson-Perry, D. eds. The Palgrave Handbook of Research Methods and Ethics in Neurodiversity Studies. Cham: Springer Nature Switzerland, pp. 61–79. Available at: https://link.springer.com/10.1007/978-3-031-66127-3_4.

Grant, A., Williams, G., Williams, K. and Woods, R. 2023. Unmet need, epistemic injustice and early death: how social policy for Autistic adults in England and Wales fails to slay Beveridge’s Five Giants. In: Cefalo, R., Rose, M., and Jolly, A. eds. Social Policy Review 35: Analysis and Debate in Social Policy, 2023. Social Policy Review. Bristol: Policy Press, pp. 239–257. Available at: https://bristoluniversitypressdigital.com/display/book/9781447369219/ch012.xml.

Reports

Williams, K. 2024. Lived experience evidence in disability policy making. Cardiff: Wales Centre for Public Policy. Available at: https://www.wcpp.org.uk/wp-content/uploads/2024/03/Lived-experience-in-disability-policy-making-.pdf

Williams, K. 2021. Autistic School Refusal/Non-Attendance and Links to Trauma. Cardiff: Autistic UK. Available at: https://www.autisticuk.org/post/report-of-data-from-our-survey-regarding-autistic-school-non-attendance-and-possible-links-to-trauma.

Williams, K. 2020. Hub Childcare Provision for Children with a Statement of Special Educational Needs in Wales during COVID-19. Cardiff: Autistic UK. Available at: https://www.autisticuk.org/post/hub-provision-for-statemented-children-survey-analysis.

Williams, K. 2020. The Expectations and Needs of the Autistic Community re: the Content and Delivery of the Oliver McGowan Mandatory Learning Disability and Autism Training for All Health and Social Care Staff. Cardiff: Autistic UK. Available at: https://www.autisticuk.org/post/report-following-the-initial-survey-to-ascertain-the-expectation-and-needs-of-the-autistic-community.